A place to show my love for my granddaughter who lives with Cerebral Palsy and my passion for painting. In an effort of raising awareness for C.P. every painting brush stroke I make on raw canvas is a stroke of love, as I discretely paint a green C.P. awareness ribbon in every piece. Can you find them?Do you know someone who would like to have a painting done? email firstname.lastname@example.org
Monday, February 1, 2010
A Cerebral Palsy Thing
Today we started our day by bringing Hailey to a Doctor's appointment at Waltham Children's Hospital. This appointment was not because Hailey was sick, she was not getting a shot, she was not getting poked and probed, she was simply having a doctor look at her to see if her Bodysuit (what she wears to help her core strength) needed to be adjusted or if she would benefit from a new suit. However Hailey still screams bloody murder by the mere site of the doctor. I often wondered if she will ever get over this fear of the doctors, but the more I read about Cerebral Palsy the more I learn that it is in fact a Cerebral Palsy thing. What I mean by that is that Hailey is very uncomfortable with anyone outside of her immediate family. She has a very difficult time with strangers, with playmates and even at family outings or holidays when a lot of family get together. From joining networks like The Cerebral Palsy Awareness Group, and Exceptional Family T.V. I was able to learn that this is not uncommon for children that share her disability.
I thought that I would try and get Hailey used to being with people, after all she is starting school this summer and I think that this is going to be a very big adjustment for her, even traumatic initially. So off we went to story time at the Blue Bunny, I thought this would be a piece of cake, Hailey loves to read books. How bad could it be. Hailey watched all of the happy children skipping in the door and finding their bright colored floor mats, crowding all around her as they plunked themselves down on the floor. Hailey screamed and pointed to the front door. I wasn't about to let her get her way, I distanced myself from the group and tried to change her focus by showing her toys and trying to read her a book on the far side of the room. I must get a new bag of tricks, I had no choice but to leave, it was too disruptive and unfair to the other children.
How is Hailey ever going to transition into the classroom? I worry about this everyday. She is learning sign language but it is her own personal sign language. Because her motor skills are affected, unless you are around Hailey everyday you are going to miss the couple of signs that she has learned... I know that Hailey does not speak but her beautiful smile says more to me than words could ever say.