A place to show my love for my granddaughter who lives with Cerebral Palsy and my passion for painting. In an effort of raising awareness for C.P. every painting brush stroke I make on raw canvas is a stroke of love, as I discretely paint a green C.P. awareness ribbon in every piece. Can you find them?Do you know someone who would like to have a painting done? email firstname.lastname@example.org
Tuesday, December 27, 2011
Friday, December 23, 2011
This year I thought was a good year for Hailey as far as the Santa Claus thing goes. I wanted to know whether she was getting the whole concept about Santa or not, so I decided to ask her questions about what she was getting for Christmas. Obviously Hailey couldn't tell me in her own words, she doesn't speak, so my questions would simply be yes or no questions. Hailey is very good at shaking her head no and when she nods her head up and down for yes, it is much more of a subtle nod, If you are not paying close attention you just may miss it. The first question I ask her is..."Hailey, have you been a very good girl this year?" Hailey slightly nods her head up and down. and then I ask..."Hailey, is Santa Claus going to bring you lots of toys?" again her head slightly cocked and she is nodding up and down. So I continue... "Is Santa going to bring you a doll baby?' up and down again. "Is Santa going to bring you a truck?" this time I think i'm going to trip her up abit, but she slowly nods her head up and down again. Now I'm thinking she is just saying yes to everything I ask her. My next question..."Hailey, is Santa Claus going to bring you some new clothes?" She briskly shakes her head NO! Just like any typical 4 year old, she is not as interested in the clothes as much as she is the toys. The following day I went home and wrote her a letter, the return envelope was from The North Pole. When Natalie read it to her, she listened attentively as her mother read these words...
Sunday, December 18, 2011
A while back I wrote a post called "A Dance for Hailey" Hailey's mom Natalie has a best friend who has a dance company called Impact Dance Company, it is a fairly new company but the dream to do this choreography has been in the making for almost 5 years now. Ever since Hailey was born with Cerebral Palsy, Meghan McCaffrey dreamed about doing a dance piece that would help others to understand and raise awareness for Cerebral Palsy and to celebrate Hailey and all that she has to offer. Well, today we had the opportunity to meet the dancers and the dancers had the opportunity to meet their inspiration (Hailey) The had the opportunity to observe Hailey's movements, and the way that she crawls,smiles,sits acts, and laughs. The next two videos are just so exciting to me, as I watch Hailey act out and perform with the dancers without any prompts from us, she was totally comfortable with what she was doing and even commanded the stage. One of Hailey's dancers summed up our morning by saying " We danced, we talked, we laughed, we learned and we cried" All of these emotions were present and I can't figure out who learned more. Us, The Dancers or Hailey. But I do know that it was one of the most positive experiences for everyone involved, and we can't wait to do it again. I don't quite know all the details at this point, but Meghan tells me she plans on doing this piece in a theatre, it will start out with some information about C.P., Possibly a video chronicalling Hailey's journey this far, and the finale will be a Rockin performance by her dance company that will captures the true spirit of Hailey. This is going to be a lot of hard work over the next few months, but I know it will be worth the wait! Thank you Meghan...head on over to Impact Dance Company become a fan and you can track the progress of this lovely and heartfelt performance for Hailey
Wednesday, December 14, 2011
about the small stuff) I have to constantly remind myself to stay focused on the positive and not let these barriers swallow me up, and to remember that wheelchairs are just a good way of getting around if a person has trouble walking. I also know that there are others out there who do not have the mobility to use a wheelchair and I should be grateful that Hailey is a candidate for one. Just because Hailey will be using a wheelchair does not mean that we are giving up hope, that one day Hailey will walk. We will continue to challenge her to reach her own personal potential, whatever that may be.