A place to show my love for my granddaughter who lives with Cerebral Palsy and my passion for painting. In an effort of raising awareness for C.P. every painting brush stroke I make on raw canvas is a stroke of love, as I discretely paint a green C.P. awareness ribbon in every piece. Can you find them?
Do you know someone who would like to have a painting done? email www.harrold.janet@gmail.com
Showing posts with label Conductive Education. Show all posts
Showing posts with label Conductive Education. Show all posts

Sunday, June 5, 2011

Conductive Education at The CLC





The Conductive Learning Center
Grand Rapids Michigan

Well friends, I have to say...The four week experience that we had at the CLC just may have changed our lives and our outlook on life forever! The people who work there are so dedicated and obviously devoted to the children who attend the center. Whether they are there for one session or if they are attending full time, the approach is the same and the goal is to promote independence. It concentrates on developing and improving gross motor skills such as learning how to sit, walk and hold on to large objects, as well as fine motor skills including learning how to hold a pencil and eat and drink. Many parents are surprised to see their child sitting on the potty for the first time.
The curriculum strategies are tailored to the needs and abilities of each student, many who have Cerebral Palsy, Spina Bifida and other Motor Challenges.
The Conductors are committed to teaching students to reach beyond what is expected. They include music and singing into a structured routine making it a fun and positive experience, so they can learn the necessary skills needed to live a more independent, confident and fulfilling life.
You can only imagine our excitement when they had Hailey up on a walker (with assistance of course) after only being there 3 days! We wholeheartedly agree with the program and want to see Hailey attending on a more regular basis. I’m not sure if that means moving to Michigan, or making the trip there more frequent. It is not even out of the question to open up a Center here in Massachusetts. Either way I have to get more aggressive in my fundraising efforts. Unfortunately Conductive Education is not covered by insurance.
Friendships are different now than they used to be, quality instead of quantity. The entire community welcomed us with open arms. The parents, the staff, and the program director were all helpful and inspirational. We felt a complete sense of belonging and unity. Families who understand, people who have never met us before opened their home and their hearts to us. It is the bond we share as families of children with special needs. Parents who have walked the road before us paved the way. The same families who have learned not to waste their precious time listening to rude comments, awkward stares and low expectations from Doctors.
To all of the Parents and Educators at The Conductive Learning Center in Michigan. I have just one thing to say. BRAVO BRAVISSIMO!

Tuesday, May 31, 2011

The House That Love Built







“The House that Love Built”

The Ronald McDonald House of Western Michigan
Their mission is to provide a “home away from home” for families of children and youth
seeking medical treatment.

As I write this post I am sitting on the front porch of The Ronald McDonald House. It’s a beautiful warm summer night in Michigan, I am feeling extremely relaxed and blessed that I am able to spend the last week of Hailey’s Conductive Education session with her. Thank you to everyone who helped to make this trip a reality. We are very proud of Hailey for all of the hard work that she is doing, and the progress she is making.

This is the house where families meet
to continue their lives, to eat and sleep.
to find their strengths and dry their tears,
to look forward with hope to better years.

Bricks and mortar seldom reflect the true nature of a house. For that transforms a house and makes it a true home, it is not the structure itself, but the love and resilience of the family who finds comfort within. The staff and volunteers here are some of the kindest people I have ever met. Their compassion is genuine and they are happy to help in any way they can. Donated goods, services and volunteer assistance help keep expenses down. The house is extremely organized. It sits on 5 beautiful acres with a walking path, picnic tables, children’s playhouses. It has 17 bedrooms, a kitchen that has four kitchenettes, it has a recreation room, laundry room, dining room indoor play room and great room. I’m sure I have missed a few things. While we were there the house had many different donations of food. The Olive Garden brought food in one night, Starbucks contributes regularly as well as random outside contributions. They offer a shuttle service that can take you to Drs. appointments, to the Conductive Learning Center etc. One of my favorite things is when they bring in therapy dogs!
Occasionally we have thought about a therapy dog for Hailey, but only time will tell if she will benefit from one. In the mean time we can still appreciate and enjoy them. When you stay at the RMDH you get free passes to some of the local Museums, fitness centers and even a zoo.
The suggested contribution is $25 dollars a night , but no one in need is ever turned away because of an inability to pay. If you are considering sending your child to the Conductive Learning Center or if you have to travel a long distance to take care of your child’s illness, I would highly recommend staying at a Ronald McDonald House, currently there are 297 houses in 30 Countries and Regions.

Sunday, March 20, 2011

Core Strength



I just love to spend Sunday afternoons with Hailey, we are not usually rushed for any particular reason. No school, no work...no worries. We can read as many books as Hailey wants to read, she loves to put about 10 books at a time on my living room chair and then come and get me to read them to her. She never tires of reading the same books over and over again. We watched movies together Dora and Tinkerbell. Hailey had to show me how to put the movies in the blue ray player, Grammie doesn’t have a clue how to work it. Thank goodness Hailey did.

Hailey has been accepted and will be attending The Conductive Learning Center In Michigan in May. We are very excited about this!
Because Conductive Education promotes development of the whole person, including physical, social, cognitively and psychological aspects, this intervention is not viewed as a traditional therapy but rather a multi disciplinary approach to improving the quality of life for children and their families. Hopefully Hailey will learn to gain control of her movements, increase her core strength and increase her level of independence. It may also help with potty training. The children and families who attend C.E. are taught problem solving skills that will allow them to develop unconventional ways of accomplishing motor tasks. Today we worked on core strength and neck and head control by sitting independently at this table that we fashioned out of a $7.99 ikea table and a towel holder that was bought at home depot. Hailey seemed to like sitting this way, but when she got excited she would let go of the bar, so of course she could not be left unattended. And of course, she still amazes me everyday!

If you have adapted any furniture in your home to help with core strength...please do share!

Thursday, February 3, 2011

Exceptional Family



A lot of you may recognize this beautiful family as Zak, Nathan and Renee Charlan from Exceptional Family T.V. “EFTV” Is my favorite online destination to visit for news and current resources and advice for children with special needs. Advice given from other parents of children who are living the “Exceptional” life. I credit this family for their humble approach and ability to expose their private lives to benefit others. I personally would like to say thank you for giving us a voice and a connection with each other, and for all that you have done to facilitate this “Exceptional” community.
If you would like a 16 X 20 oil painting of your child email me www.harrold.janet@gmail.com 100% of the proceeds go to Hailey's Conductive Education

Sunday, January 30, 2011

Painting of Sofia and Carter


It's been a little while since I have painted, and it sure feels good to be back at it. This beautiful little girl Sofia also has C.P. She has been going to The Conductive Education Centre in Halifax, N.S. Canada She had been taking classes with Ben and his mom Cary from about the small stuff Cary mentioned to her about my raising money for Hailey to go to The Conductive Learning Center in Grand Rapids, Michigan, she contacted me to paint this lovely shot of Sofia and her cousin Carter making music together at the piano. I sure hope she likes it! Our goal of getting Hailey to Conductive Education is getting closer and closer. We have started the application process and if accepted she may be attending the May-June session this year! If any of you are thinking that you would like a 16 x20 of your child painted in oil for $100.00, now is the time to contact me. This offer may change in the near future. contact me at harrold.janet@gmail.com

Tuesday, January 25, 2011

A Conductors Point of View on Conductive Upbringing


My next guest blogger is Viktoria, she is a Conductor and now a step mom to beautiful India who has C.P. India is very fortunate to have someone with such expertise love and care for her, but if you ask Viktoria I am sure that she will tell you that she is the lucky one.

Thanks to Janet for this great opportunity to share. My name is Viktoria and I trained as a conductor-teacher 12 years ago. Since then, I traveled to and worked in several countries and worked with hundreds of disabled children and their families. I feel that each time at each place I’ve leant more than I’ve ever dreamed to be able to teach—not just about my profession, or disability, but about people. After ten years of traveling I settled in the USA with my fiancée, who—as life has it—has a daughter who has cerebral palsy. So it happened that I got to practice what I preach!
My fiancée’s daughter is 12, and she’s beautiful. Her name is India. She started going to conductive education camps when she was little, having to travel states and countries; now she goes to a regular school and is raised at home the conductive way. This is called conductive upbringing—something that I can’t describe without first explaining what it is NOT.

I apologize that I do have to complain here. It’s almost impossible to find useful information about conductive education on the internet (“conductive upbringing” is the correct translation of the original Hungarian term; “conductive pedagogy” is the pedagogy behind what is a way of parenting and a way of life). Almost everything that one finds after a Google search of “conductive education” is laden with capital errors and very confusing misinformation. Please don’t believe for a second, regardless of how many websites, parent or professional blogs, discussion forums etc. are trying to explain you that conductive education is a “therapy”, “alternative therapy”, “holistic method” or anything anywhere near these: conductive education has NOTHING to do with medicine, (neither “conventional” nor “alternative”), it has no place in medical journals, and no self-respecting medical professional should ever try to analyze pedagogy as if it was some kind of cure for an illness!

Doctors are incredibly useful. They might have saved your child’s life. Their opinion is relevant when it comes to their area of expertise: diagnosing and treating medical conditions. A lot of children with brain injuries have one or more of those underlying medical issues that do need medical attention and various interventions. However, their opinion about your parenting skills and pedagogy in general is not more relevant than anybody else’s as these are usually not their area of expertise. Pedagogy is a social science.

The confusion about conductive education has several reasons and it has been around since the beginning (conductive pedagogy has been around for several decades, but was hiding in Hungary behind the iron curtain until the 1980s). One of the reasons may be that the brain or spinal cord injury that causes the disability is usually acquired in circumstances that include accidents, hospitals, doctors; so one is likely to search for the solution there, and assume that if the injury is in the central nervous system, then the central nervous system has to be “doctored” in some way to eliminate the disability. The problem with this is that it is unfortunately not possible to do this. The injury to the brain or spinal cord is final and irreversible—any doctor knows this, even first-year medical students, and they are likely to tell you about this—hence the impression that “there’s nothing that can be done”. The doctor may even warn you of “certain elements” that may play on your despair, use your misfortune to sell you products and interventions that promise to reverse these injuries and that your longing for hope may dupe you into going for these (these are called “quack therapies”, and include stem cell therapy, hyperbaric oxygen therapy, magnetic therapy and many more). The doctor is right; regardless of what any of these charlatans claim, irreversible injuries remain irreversible.



The good news is that this doesn’t mean that nothing can be done. The way the disabled child is brought up will make all the difference between an inactive, helpless, dependent child and the active, motivated, independent one: that’s your power as a parent. The upbringing you provide, the opportunities you give your child to learn, to participate, to help themselves are all going to make the exact same impact as they would if your child didn’t have a disability. You wouldn’t question your impact in case of your typical child, why would you do that in case of your disabled child?

Conductive education schools, camps, or conductors who work directly with your family all serve the purpose of teaching you, the parent how to teach your child just about anything: how to motivate, encourage and help them to move, reach for toys, learn ways to change their place, to play, to communicate, to eat, to wash, etc.; how to organize your day so that you can fit everything in that you need to fit in; how to deal with funky behaviors and so on. It is a complete lifestyle “package” that is based entirely on common sense (which makes it incredibly difficult to describe!) Parents who are lead to believe by someone for some reason that conductive education is some sort of alternative movement therapy based on repetitive exercises superior/inferior to physical therapy loose out because even if they participate, they will not be able to raise their child in a conductive way therefore benefits, if any, will be marginal.

Pedagogy is a science but you don’t get the same quantitative proofs you get with Math. While studying to be a conductor, one learns a lot about the history of pedagogy, theories that came and went over the centuries and decades, theories that might have affected the birth of this very complex education system. However, conductive education is not based on any set scientific theories, it is just based on the aforementioned common sense and easily observable everyday facts: teaching might cause learning; more/better teaching might cause more/better learning; what you don’t even try, you may never learn; if you really want to learn something and you try, you may eventually learn it even if it seems against the odds at first; solving an impossible-to-solve complex task may become possible if it’s broken down to simple tasks and solved one after each; I could go on and on. There is almost nothing in conductive education that wouldn’t be observable in the way an average good family raises their kids or an average good teacher manages their classroom, but what is unusual about conductive education for the newcomer is that these everyday routines, parenting and teaching methods and techniques are applied to a broader population: disabled kids involved. This extreme simplicity of conductive education is what makes it so very difficult to understand for most. The results seem unbelievable because the disabled children do eventually end up learning and doing things they couldn’t do before, so everyone thinks there are some great and advanced scientific discoveries or “brain tissue recovery” and “brain rewiring” involved, while there is nothing like that. It’s the nature of people that they’re looking for explanations and it’s hard to accept that a major achievement of a disabled child is just a result of simple teaching and learning and not “healing”. That’s why we see a lot of descriptions of conductive education that try to make sense of it by providing these medical-style explanations of healing brains, but I can assure everyone that none of those are correct and every time you see one of those just click and go to the next page, because you’re wasting your precious time.

You should also quickly dismiss your source of information if you hear that you have to go to Hungary to get “real” conductive education, or that your child has to be in a group, or that you have to purchase the “original” wooden furniture that has been in use in conductive classrooms in Hungary. The truth is that you can learn to become a conductive parent in a very wide range of circumstances: if there’s a conductive education school near you where your child can attend full time that is really a lucky situation, but if there isn’t you can still try to attend one of the summer camps or you can try and get a conductor to come to your house a few times a year to teach your family. When this conductor got to know your family and your situation, you can even cut back on the costs of travel and whatnot and ask for their help using Skype and a webcam, at least some of the time.

If you become a conductive parent you can raise your child the conductive way and provide conductive upbringing at home. That’s the whole point. Being a conductive parent means that you are a conductive parent at all times, morning, noon and night, in the sitting room, kitchen, bathroom, car, park and at the grocery store, not only at specially allocated times and places. It means that you’re aware that your child’s disability is not an illness that’s awaiting the cure so that he can become a whole person, but that he’s already a whole person, and he’s a lifetime learner like everyone else. You as a conductive parent are also a lifetime learner like everyone else and you’re constantly learning and discovering ways to help your child’s learning.

There’s a lot more to say, but I’ll leave it here for now. I would like everyone to know that it’s worth to be a conductive parent. It initially seems more work and may be emotionally hard—there are times when you don’t help your child, you let them struggle and that may make you feel bad at first—but you can expect a payoff soon. Children can be very well aware of their achievements and that can make them feel really happy. That’s how India’s father hooked on: after he got a glimpse of what his supposedly helpless little girl could do and the huge smiles that even struggles and tears eventually ended up in, he never looked back. Not many people do.

Thank you to Viktoria for sharing with us a Conductors Perspective on C.E. you can read more about her and India at Conductive Upbringing

Sunday, November 28, 2010

"Another Painting"


I’m sure these boys look familiar, this is the 3rd painting that Caryanne from About the Small Stuff commissioned me to do of her adorable twin boys. (Daniel and Benjamin) She was hoping to have it in time for her parents as a Christmas present and I wrote to her a told her that I probably wouldn’t get to complete it in time, with my mom being sick and it being holiday time at work etc. but to my surprise I actually pulled it off. Yeah! I absolutely loved painting her boys they are soo cute and Ben, like Hailey has Cerebral Palsy. If it isn’t obvious in the painting and I know alot of you look for this now. This time I placed the green c.p. awareness ribbon over their grandpa’s heart. If you would like a painting of your child, please don’t hesitate to email me at harrold.janet@gmail.com 100% of the money will go directly to Hailey for future therapies that are not covered by insurance. Such as Conductive Education, Hippotherapy etc.

Tuesday, March 9, 2010

Conductive Education


As many of my friends already know, my family and I have been seriously looking into an alternative therapy for Hailey. Unfortunately we have decided to wait until next summer. Although I believe we should begin this therapy as soon as possible. Hailey just has too much going on this year. She will begin school in June (a tremendous transition for her from her current Early Intervention Program) and we are now beginning to train on a communication device for Hailey (A blog for another week) Conductive education is an intensive, multi-disciplinary approach to education, training and development for individuals with cerebral palsy. It is generally a five week program and it is not covered by insurance. We have enough savings for the first session but eventually we may need to look into having some kind of fund raiser for repeated therapies as it usually takes more than one session. Because there isn't a facility in Boston we had to look out of state for this and we have looked into three different locations. (For my fellow blogger parents of children with CP and spina bifida) I believe that this therapy may be one of the determining factors of whether or not Hailey walks. If she doesn't walk that's o.k. but we as a family have to know that we have exhausted all avenues. The first facility that we looked into was located in Winter Park Florida. I thought this would not be bad, I actually have a home in Florida and the kids would have somewhere to stay for 5 weeks, great that would save some money on expenses. After researching the next two facilities the one in Florida began to look a bit inferier. So we looked into one in Pincton Ontario. Although this was the most expensive of the three, somewhere in the ballpark of $9000.00 for the five week program that they recommended. I actually liked this one alot and you can actually live there in the facility for 5 weeks. Not too bad. This one to me looked pretty darn good. Then we looked at the one in Grand Rapids Michigan, this was half the price and seemed to have a program equivilant to the one in Canada. If you go to their facility you can also stay at the Ronald Macdonald House and a shuttle will bring you back and forth to the CE facility. In our opinion This is the one that looked to be the best program for Hailey. We now have a year to continue to explore and raise money before we make a definitive decision. In The mean time we will start to take our cue from Conductive Education Therapy and attempt to make some of the furniture that they use in their programs. If any one has any information on CE please post a comment. Also, March is Cerebral Palsy Awareness Month and I hope that all of my family and friends will be wearing green ribbons to show your support and love for Hailey and other children with her same disability. If you need to know where to get one I hope to be putting a list of locations up on my blog as well as on facebook in the next few days. if anyone who knows of a business that would let me put a jar of ribbons on their counter please let me know. Thanks, looking forward to hearing from you all soon. :o)